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Jeannie Ewing's avatar

Tiffany, before I got to the end of your post today, I scribbled on a sticky note, "Look up DeleteMe." Honestly, I forget how naive I can be, how trusting of others. When you wrote this, I was reminded of something predatory that happened on Facebook several years ago. I had posted a photo of Sarah as a baby, post-operation, to commemorate the anniversary of her cranial vault reconstruction. It took a while, but about four weeks later, maybe longer, I received a DM from someone who followed me that included a screen shot of Sarah's photo that was being exploited by someone who claimed Sarah was THEIR child who had Down syndrome. It was during this era of "please like and share," online predators capitalizing on people's sympathy in order to garner huge numbers of likes and shares. I had to go through specific channels on Facebook to demand its removal and that this site would be shut down--and to my surprise, it happened as I'd requested, rather quickly, too.

I think you are wise to be skeptical and cautious. I have always been the type of person others say "wears her heart on her sleeve." I suppose that's what's deeply wounded me, then--the betrayals of others who knew too much about me. I write very openly, too, and seldom do I consider how my photos might be scrutinized by the wrong person to decipher where our family lives or how to stalk us or something like that. I should know better. I feel disappointed and a bit terrified that I need to consider such things, to be honest. And I'm almost 44. I should know better, right?

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Leslie's avatar

I consider it a good day anytime I find someone or some words that show me something new, challenge my thinking, make me ponder and wonder. I’m angry that might lead to someone being abused or threatened. I’m sad that might lead to someone retreating or disappearing. I’m appreciative that some show up and speak and write anyway. This world is so tilted right now.

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